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2022-11-23
Disability Rights Fund, Inc.;
People with disabilities face massive discrimination, segregation, violence, chronic poverty, continuous violations of their human rights, and in the midst of crisis – such as COVID-19 – are disproportionately impacted. For girls, women, and youth with disabilities, the compounding consequences of these injustices are disproportionately exacerbated. Yet, in spite of the extreme systemic violence faced by people with disabilities, they continue to fight against centuries of marginalisation, discrimination, and violence, and have organised a global Disability Rights movement. And, largely led by Black and Brown girls and youth Disability Rights activists, powered the second wave of the Disability Rights movement that, as Sins Invalid states, brings us to a "path and goal of Collective Liberation, in which we hold the question "How do we move together" - as people with mixed abilities, multiracial, multi-gendered, mixed class, across the orientation spectrum - where no body/mind is left behind."In this report, we reflect with honesty about our feminist journey toward learning how to centre Disability Justice in our resourcing, offering insight into the Disability Rights and Justice work we have resourced through our Funds. We highlight reflections and perspectives from the Disability Rights activist advisors that lead the resourcing (grantmaking) decisions, and share key learnings that have been woven through ecosystem and community conversations. In addition, our partners, the Disability Rights Fund and MADRE offer insights into their work.
2022-03-17
Northwest Health Foundation;
This toolkit is aimed at helping Black, Indigenous and POC-led organizations (that are not primarily focused around disability) examine where they're at in practicing disability justice, and where they want to learn and grow. It includes questions for self-assessment, links to access tools, organizational stories and more.
2023-02-01
Disability & Philanthropy Forum;
One in four adult Americans and an estimated 1 billion people globally experience disability, but foundation funding for disability only represents approximately two cents of every foundation dollar awarded.Foundation Giving for Disability: Priorities and Trends offers a first-ever, detailed examination of how U.S. foundations focus their support for disability communities. It serves as a resource for understanding the scale and priorities of current support and provides a baseline for measuring changes in funding going forward.
2022-03-03
Disability & Philanthropy Forum;
The Disability & Philanthropy Forum is an emerging philanthropy-serving organization created by the Presidents' Council on Disability Inclusion in Philanthropy. Central to the Forum's mission is expanding philanthropic commitment to disability rights and justice by centering the leadership of the disability community.To help funders and philanthropy-serving organizations as they engage in their disability inclusion journeys, the Forum created the Disability Inclusion Pledge. The Pledge identifies concrete ways for funders and others in the sector to actively shift away from policies and practices that perpetuate ableism — the systemic stigmatization of and discrimination against people with disabilities — and uplift disability as an essential component of advancing equity.Beginning the Journey: Disability Inclusion Pledge Survey Findings and Recommendations provides a baseline measurement of how current practices and plans of responding Pledge signatories align with each of the eight action agendas included in the Pledge.
2009-09-17
National Hospice and Palliative Care Organization;
Many people with disabilities are living longer now with more modern and technological advances in health care, and need different kinds of care and support, particularly at the end of life. In addition, trends show that parents and caregivers of those with disabilities are not outliving their children as they historically did in most cases. With the changing trends, hospice providers need to be ready for to care for people with disabilities and their families as well as a child or adult with a disability whose parent is under their care.
2018-12-03
The Ian Potter Foundation;
This document is intended for future applicants and grantees in the Disability program area. It contains the summarised learnings of all Disability grantees over the past seven years.The information documented here has been taken from the final reports of Disability grantees, which were submitted to The Ian Potter Foundation following the completion of their projects. As such, the views expressed here do not necessarily represent the views of The Ian Potter Foundation.Please note that the guidelines for the Disability program area have recently been narrowed, and as such the learnings in this document may be broader than our current objectives.
2020-10-01
National Network of Consultants to Grantmakers;
As a growing number of foundations consider disability inclusion in the context of their internal policies and practices as well as their external-facing work, the need to strengthen the infrastructure and ecosystem that supports those efforts is becoming increasingly important. This working paper, commissioned by the National Network of Consultants to Grantmakers (NNCG), provides a high-level overview of the current philanthropic landscape—the ways in which foundations are incorporating disability inclusion into their work as well as the ways in which consultants have been supporting their efforts.
2022-12-02
Purposeful;
Documenting Disability Rights activists' stories of resistance is a deeply political act. Introducing Our Resistance: Stories of Disability Rights Activists, a feminist storytelling project that tells the beautiful, rich, diverse and unfiltered stories of Anisie Byukusenge, Aminata, Crystal Asige, Elizabeth Patricia Pérez, Estefanía Cubillos Nova, Indira Azucena Vargas, Mariana Veliz Matijasevi, Nur Matta, and Monica Yeanie Ghaliwa: nine Disability Rights activists working to transform and remake the world into one that honours their full and rich humanity, experiences, and that is rooted in Disability Justice. This storytelling effort was seeded and curated in partnership with Stories of Girls' Resistance, a global feminist storytelling project dedicated to documenting and amplifing the invisible and untold stories of girls, women, and non-binary people's resistance.
2021-01-27
Bipartisan Policy Center;
In the late 1990's Congress recognized that federal policy not only established low expectations for people with disabilities to live and work independently, but also that the Medicaid program created disincentives for those with disabilities who wished to work. Congress, along with the Clinton administration, enacted laws creating two optional Medicaid eligibility groups through section 4733 of the Balanced Budget Act (BBA) of 1997 and Section 201 of the Ticket to Work and Work Incentives Improvement Act (TWWIA) of 1999.While Medicaid is the primary source of health insurance for people with disabilities, the program provides much more than health care services. Medicaid allows individuals with disabilities to live independently in the community. In addition to health services, Medicaid covers case management services, transportation, specialized medical equipment and supplies, and home and community-based services—including personal care assistant services—among other services not covered by Medicare or private health insurance. BBA and TWWIIA provided additional flexibility for states to offer Medicaid coverage to higher income working individuals with disabilities who—excluding income—meet the Social Security definition of disability. Together, these programs are referred to as Medicaid Buy-in (MBI) for Workers with Disabilities. Separate and distinct from recently implemented Medicaid Community Engagement Demonstrations with work-requirements, the Medicaid Buy-in eligibility option allows workers with disabilities access to Medicaid community-based services not available through other insurers.Over the last year, the Bipartisan Policy Center has identified recommendations to improve availability of the MBI for workers with disabilities. As part of that effort, BPC reached out to stakeholders and hosted public and private discussions with experts on the topic. Participants included current and former state and federal officials, consumers, and other experts. Based on those discussions, BPC developed recommendations to improve Medicaid Buy-in programs for working people with disabilities.
2022-07-26
United for ALICE;
Longstanding discriminatory policies and practices that impact access to education, employment, health care, housing and other resources create barriers to financial stability for people with disabilities. This fact hits home for the more than 40 million people in the U.S. who have a cognitive, hearing, vision, or ambulatory disability, or one that makes self-care or independent living difficult.According to the outdated Federal Poverty Level, 18% of people with disabilities in the U.S. lived in poverty in 2019. Yet United For ALICE data shows that another 34% were also struggling, in households that earned above the FPL but less than what it costs to afford the basics. These households are ALICE: Asset Limited, Income Constrained, Employed.Between families in poverty and those who are ALICE, more than half of all people with disabilities in the U.S. lived in a household with income below the ALICE Threshold, struggling to afford essentials in the communities where they lived.
2022-12-19
Bipartisan Policy Center;
The Bipartisan Policy Center's Health Program is building on its previous report, Improving Opportunities for Working People with Disabilities (January 2021), to address barriers to employment for Medicaid beneficiaries with disabilities who often rely on Medicaid's unique services, such as home and community-based services (HCBS), to live independently in the community and work.The Medicaid Buy-In (MBI) for Workers with Disabilities refers to three eligibility groups within Medicaid that allow states to cover working individuals with disabilities who, excluding earned income, generally meet Social Security's definition of disability. The MBI for Workers with Disabilities therefore allows individuals with disabilities to work and retain their Medicaid coverage, or to use their Medicaid coverage to access wraparound services that are not covered under employer-sponsored insurance or Medicare. Enrollment in the MBI for Workers with Disabilities eligibility groups is associated with increased employment and earnings, while also having a positive impact on the economy, state Medicaid agencies, employers, and state and federal governments.In this report, BPC identifies federal policy reforms that will encourage more states to cover or optimize their coverage of the MBI for Workers with Disabilities eligibility groups. These reforms will improve access to the MBI for Workers with Disabilities programs and, thus, allow more Medicaid beneficiaries with disabilities to work and achieve their employment potential. More specifically, BPC has identified a set of federal policy recommendations that Congress and the administration should advance. These federal policy reforms will clarify existing flexibilities that states can adopt when designing their MBI for Workers with Disabilities programs while also strengthening outreach, data, and interagency coordination.
2016-06-29
IIE Center for Academic Mobility Research & Impact;
More than one billion people—15 percent of the world's population—live with some form of disability. This large number belies the fact that people with disabilities are often among the most marginalized, neglected, and invisible members of society, particularly in developing countries, which are home to 80 percent of the world's disabled population. As part of its aim to provide higher education opportunities to disadvantaged groups from around the developing world, the Ford Foundation International Fellowships Program (IFP) provided graduate fellowships to nearly 175 emerging social justice leaders who have disabilities and/or work in areas of disability rights, advocacy, and service provision. Since IFP's conclusion in 2013—and with support from the Ford Foundation—the Institute of International Education (IIE) has led a 10-year IFP Alumni Tracking Study that seeks to document the personal trajectories of these and other IFP alumni, as well as the impacts they are having on their home communities morebroadly.We asked IFP alumni who work in the disability field a simple question: What challenges do individuals with disabilities face in your country and how are you working to find solutions? Alumni from around the world engaged with disability issues in various capacities responded, describing the myriad difficulties faced by people with disabilities in their home countries, as well as the efforts being made to improve their lives. This brief shares examples and common themes that emerged from the stories of alumni disability advocates in five IFP countries: Chile, India, Kenya, Russia, and Uganda.Their responses indicate that regardless of their location or impairment, people with disabilities face similar challenges at the individual, community, and national levels. Beyond these common challenges, IFP alumni are also united by the fact that their fellowship experience gave them new tools and perspectives to promote disability rights, improve services, and advance inclusive policies in the developing world.
